Another week has gone by an now another is starting.... I really wish I could wake up every morning happy go lucky and ready to take on the day. But no everyday I dread waking up, dread the day and wonder how I am going to get through the day and week. Everyday is the same old seizures, fighting with Quinn about food and trying to get Quinn to eat. Then on top of that all Quinn yelling at me, biting me when he is frustrated and trying to run away or hide. Then finally they all go to bed and I get an hour of no stress or watching Quinn like a hawk... go to sleep and don't want to wake up til tomorrow because then it will all start again. Life of a mom to a special needs child is sure not a walk in the park.... I am struggling so much with this because I don't have the patience to get through everyday. I am fighting to get through every 5 mins, I feel trapped in this life of downs. It seems we always get bad news about Quinn. His seizure count is up again, his daily movements like using his hands has gone downhill... he is always very shaky. I am trying everything I possibly can to help him and nothing seems to be working. So trying to stay positive isn't easy. This morning I have to attempt to get groceries with the 3 kids ... this itself is a challenge with Quinn being on his diet. I will be ready to cry by the time I leave the store as Quinn will screaming because he can't have the food.
When will this get easier ? Or bearable....
Life sure isn't what you plan or expect !
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