Friday, November 23, 2012
Our obession with *stuff*
This morning I posted a comment on a facebook page where people were talking about how the parking lots at Walmart and other stores were FULL for Canadian Black Friday sales. My comment was " I can't believe how greedy people are with things, maybe we should all be sent to a 3rd world country and see if that would change society ways of thinking"
WOWZERS did I ever get thrown under the bus on this page... The negative comments just started pouring in on my post. Now I am not saying I am ANY better then these people. I'm not I am just obsessed with stuff as much as other people. So next time I will clarify my comment more and state I am thinking of the people that load their carts with toys and things they don't need.
This year has been life changing for us due to Quinn's health problems. It really puts things into perspective for us. Stuff isn't important even though I do like stuff. ( Like my Keurig which was an early Christmas present from Kevin and kids). I am all for saving money and getting great deals. But do kids really need another toy ? Do we really need that other Tv ?
I challenge everyone this Christmas to really think of stuff and how much we buy and give. I know this year I will be doing a lot of homemade gifts ( sorry people if you don't like homemade lol) because home made gifts mean so much more to me. Our kids will get 1 toy each and 1 clothing item from Kevin and I.
We are so blessed to live here in Canada were we have heat,water,food and way more possessions when we could ever need.
What is important to you this Christmas ? Also what are you Thankful for ?
We have so much to be thankful for and I pray we all can see that more and realize what is important in life :)
Tuesday, November 20, 2012
Ups/downs and mooning
Life is back to normal ( for now) around here ! Except that Kevin is gone which isn't normal and really hard for me to adjust too.
Quinn is back to his crazy self... energy has returned with vengeance to make up for the few days he was out of commission ! This morning I walked into my living room to see him standing on the bench in my bay window with his undies pull down and butt cheeks to the window mooning the school bus picking up the girls. BOYS.... seriously would a little girl think hmmm I am going to show the world my butt ?? Thankfully Quinn is 3.5 and it is still somewhat funny !
Quinn had a day free of seizures !!! This is only the second time this has happened since March when he first started having seizures. This is so amazing but of course I'm still on edge waiting for one to happen because that is the way our lives have been since March. Praying for another seizure free day tomorrow ! Not sure if the change in his medications is helping the seizures or if it is something else.
This morning was a rough go for me ( could have been I was just so exhausted from Quinn being up at 430am in the mornings), when I don't get proper sleep ( enough) I start to worry and stress. Them two evils we taking me over this morning. I know I can't control anything with our home selling or people looking at it. I just really wish it would sell already or SOMEONE look at it ! We did have the one showing a couple weeks ago but nothing came of that. Being alone with the kids is extremely hard, emotionally and mentally. Because Quinn has so many needs he takes way more of my energy then I already have then I have the girls also. All hell broke loose this morning... since Quinn was up at 430am the girls got up at 5am.... then the fighting started and screaming. Brooke refusing to go to school, the girls mad at me because they don't like the lunch I'm packing for them. Quinn yelling and throwing his breakfast because as soon as I give him what he wants for breakfast he doesn't want it anymore or its yucky and he will throw it across the room if I don't get to his highchair quick enough. Oh and to boot my coffee pot is not working like it should and coffee isn't that easy to come by. ( Really hope Santa brings me a Keurig for Christmas). Then there is Emma screaming at me because her clothes don't fit OK and they are to tight ( when they aren't) ( yes I could be thankful she wants to wear loose fitting clothes and I am). All this before 7am..... and then all hell breaks loose again at 330pm :)
So I crave the day when I can shower alone... pee alone...do anything alone... but then the realty hits that we aren't a normal family... we have a special needs child who most likely will always need 24/7 care and can't be alone. He may not have had seizures today which is amazing but he still needs help with everything from walking to getting a drink ( his balance is always off so he falls really easy and spills everything), his needs his diapers changed several times throughout the day and I have to try and understand him when he talks to me ( because his speech is somewhat slurred and hard to understand due to the seizures and brain damage).
But back to ONE DAY AT A TIME... It is just a really hard to thing accept. Other moms are taking about working out, going for a run, going shopping, getting their hair done, going back to work and these aren't things I get to do anymore. Our lives revolve around Quinn and his needs. Our needs are last and rarely happen.
I have to always remember this saying I read several months ago.... What screws us up most in life is the picture in our head of how it is supposed to be !
Someday peace will come and until then I just need to get them big girl panties on ;)
Quinn is back to his crazy self... energy has returned with vengeance to make up for the few days he was out of commission ! This morning I walked into my living room to see him standing on the bench in my bay window with his undies pull down and butt cheeks to the window mooning the school bus picking up the girls. BOYS.... seriously would a little girl think hmmm I am going to show the world my butt ?? Thankfully Quinn is 3.5 and it is still somewhat funny !
Quinn had a day free of seizures !!! This is only the second time this has happened since March when he first started having seizures. This is so amazing but of course I'm still on edge waiting for one to happen because that is the way our lives have been since March. Praying for another seizure free day tomorrow ! Not sure if the change in his medications is helping the seizures or if it is something else.
This morning was a rough go for me ( could have been I was just so exhausted from Quinn being up at 430am in the mornings), when I don't get proper sleep ( enough) I start to worry and stress. Them two evils we taking me over this morning. I know I can't control anything with our home selling or people looking at it. I just really wish it would sell already or SOMEONE look at it ! We did have the one showing a couple weeks ago but nothing came of that. Being alone with the kids is extremely hard, emotionally and mentally. Because Quinn has so many needs he takes way more of my energy then I already have then I have the girls also. All hell broke loose this morning... since Quinn was up at 430am the girls got up at 5am.... then the fighting started and screaming. Brooke refusing to go to school, the girls mad at me because they don't like the lunch I'm packing for them. Quinn yelling and throwing his breakfast because as soon as I give him what he wants for breakfast he doesn't want it anymore or its yucky and he will throw it across the room if I don't get to his highchair quick enough. Oh and to boot my coffee pot is not working like it should and coffee isn't that easy to come by. ( Really hope Santa brings me a Keurig for Christmas). Then there is Emma screaming at me because her clothes don't fit OK and they are to tight ( when they aren't) ( yes I could be thankful she wants to wear loose fitting clothes and I am). All this before 7am..... and then all hell breaks loose again at 330pm :)
So I crave the day when I can shower alone... pee alone...do anything alone... but then the realty hits that we aren't a normal family... we have a special needs child who most likely will always need 24/7 care and can't be alone. He may not have had seizures today which is amazing but he still needs help with everything from walking to getting a drink ( his balance is always off so he falls really easy and spills everything), his needs his diapers changed several times throughout the day and I have to try and understand him when he talks to me ( because his speech is somewhat slurred and hard to understand due to the seizures and brain damage).
But back to ONE DAY AT A TIME... It is just a really hard to thing accept. Other moms are taking about working out, going for a run, going shopping, getting their hair done, going back to work and these aren't things I get to do anymore. Our lives revolve around Quinn and his needs. Our needs are last and rarely happen.
I have to always remember this saying I read several months ago.... What screws us up most in life is the picture in our head of how it is supposed to be !
Someday peace will come and until then I just need to get them big girl panties on ;)
Wednesday, November 14, 2012
When all else fails ...SMILE !! :)
It has been a long time since my last post ! Things are always changing in our household it seems. Last month we found out we will be moving back to Alberta ! We made this choice because Quinn needs access to better health care since his condition is so unknown and Edmonton has more specialists then Saskatoon does. Also because I need my mommma... :)
So Kevin is already living in Alberta and working and I get to be a single mom til our acreage sells !! Then I move to Alberta with the kids, dogs and cats... oh and all our stuff.
Quinn meet with genetics specialist in Edmonton on Friday and they talked to us and said they feel Quinn doesn't have a treatable condition and they don't know what this is or why. They took a lot of blood for blood work and are going to take his DNA apart to see if they can find some missing links and etc. This process will take about a year to complete. Quinn started to feel sick with a fever on Thursday last week... yesterday he had an EEG appointment and meeting with the peds neuro Dr and they suggested we bring him down to Emerg since we were in the hospital anyways. After listening to Quinn and checking him out they decided to run some x rays and blood work ( the blood work was horrible because all this veins are blown out from last weeks blood work but after 10 mins of us pinning him down and him screaming they finally found a vein that would work). They decided he has pneumonia and also found a heart murmur ! Go figure eh....They first wanted to determine that the murmur wasn't being caused from the pneumonia and it wasn't thank goodness ! So they treated him for the pneumonia and we will deal with the heart murmur later. During our 6.5 hours in the hospital Brooke who was with us was amazing..... she rarely tested my nerves... she must have known mommy was stressed out !! Also I am sick too so that doesn't help my nerves.
So little things to be thankful for.... I am listing 10 but there is a lot more :)
1) I am thankful the heart murmur isn't as severe as they thought...
2) Popsicles from the ER nurses for Brooke and Quinn.... they were a lifesaver !!
3) The little treat bag that Dr Gamble gave to the kids from the Starlight Foundation !
4) For Christine ( Emma's bus driver) that took Emma home after school and watched her for him until 7pm when we were out of the hospital.
5)For Dr. Cattell's comment of OH I remember you ... you and your husband are such calm people and are just amazingly calm. ( from all the ER visits we have made with Quinn).
6) For the strength and courage to once again hold my little man down again as they try to find a vein to get blood from for blood work... holding your little one down never gets easier ( as you try to convince them you are doing this to help them).
7) For the nice Pharmacist at Walmart who said... you are still smiling through this all and I don't know why... my reply.... SMILE and smiling help everything when you don't know what else to do... SMILE lol... ;)
8) Quinn keeping his meds down after me having to put them in his mouth and hold his mouth closed... poor little guy is getting so strong and it hurts as a momma to have to pin your child down :(
9) Great report cards from the girlies from school !!
10) Quinn eating a slice of ham at supper tonight,.... first food in 5 days !!!!
So Kevin is already living in Alberta and working and I get to be a single mom til our acreage sells !! Then I move to Alberta with the kids, dogs and cats... oh and all our stuff.
Quinn meet with genetics specialist in Edmonton on Friday and they talked to us and said they feel Quinn doesn't have a treatable condition and they don't know what this is or why. They took a lot of blood for blood work and are going to take his DNA apart to see if they can find some missing links and etc. This process will take about a year to complete. Quinn started to feel sick with a fever on Thursday last week... yesterday he had an EEG appointment and meeting with the peds neuro Dr and they suggested we bring him down to Emerg since we were in the hospital anyways. After listening to Quinn and checking him out they decided to run some x rays and blood work ( the blood work was horrible because all this veins are blown out from last weeks blood work but after 10 mins of us pinning him down and him screaming they finally found a vein that would work). They decided he has pneumonia and also found a heart murmur ! Go figure eh....They first wanted to determine that the murmur wasn't being caused from the pneumonia and it wasn't thank goodness ! So they treated him for the pneumonia and we will deal with the heart murmur later. During our 6.5 hours in the hospital Brooke who was with us was amazing..... she rarely tested my nerves... she must have known mommy was stressed out !! Also I am sick too so that doesn't help my nerves.
So little things to be thankful for.... I am listing 10 but there is a lot more :)
1) I am thankful the heart murmur isn't as severe as they thought...
2) Popsicles from the ER nurses for Brooke and Quinn.... they were a lifesaver !!
3) The little treat bag that Dr Gamble gave to the kids from the Starlight Foundation !
4) For Christine ( Emma's bus driver) that took Emma home after school and watched her for him until 7pm when we were out of the hospital.
5)For Dr. Cattell's comment of OH I remember you ... you and your husband are such calm people and are just amazingly calm. ( from all the ER visits we have made with Quinn).
6) For the strength and courage to once again hold my little man down again as they try to find a vein to get blood from for blood work... holding your little one down never gets easier ( as you try to convince them you are doing this to help them).
7) For the nice Pharmacist at Walmart who said... you are still smiling through this all and I don't know why... my reply.... SMILE and smiling help everything when you don't know what else to do... SMILE lol... ;)
8) Quinn keeping his meds down after me having to put them in his mouth and hold his mouth closed... poor little guy is getting so strong and it hurts as a momma to have to pin your child down :(
9) Great report cards from the girlies from school !!
10) Quinn eating a slice of ham at supper tonight,.... first food in 5 days !!!!
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