The essay for the contest that we didn't win

LGS changes lives. We have discovered an learned this on our journey.  We have learned we have no control of when or where seizures will happen. There is never a convenient time for a seizure. Our lives changed in the blink of an eye. We were blessed with a beautiful healthy boy in Jan of 2009. He developed normally an there was never any health concerns.  This all changed on March 24 2012 in the afternoon. It started with one seizure in which he stopped breathing an then progressed into 50 seizures a day and now he is suffering from hundreds of seizures a day. He now is covered in cuts/bruises an struggles with his walking an balance. He also is now using a wheelchair because of his balance an amount of seizures. LGS is devastating.  Life isn't fair as we have now come to know. Having to watch your child suffer through seizures an as a parent you can just watch an comfort them is the hardest part. Not being able to take their seizures away an make them better is frustrating. 
We have now accepted we can't take their seizures away but we can fight for them an never give up hope for a cure/treatment that works or a miracle. 
We beg with God to take their place, that we could take their pain an suffering.  We plead for a cure an pray for seizures to stop.
Our special little boy has taught us so much. He always has a smile on his face even after a seizure that smile comes back. He is a trooper,  he is a fighter an he has so much strength. He has so much passion for life, he doesn't let seizures slow him down, he doesn't complain an he always lights a room up with his smile an big blue eyes which always get all the ladies. 
We could all learn so much from our special children. 
We have found strength we didn't know we had an endured more then we could have ever imagined. We have learned strength, endurance, courage an love through our journey. We take life day by day, moment by moment an minute by minute. Life is unpredictable, life is precious.
Our situations an life is not what we planned. We all had a plan before our special children. It didn't include having to watch your child suffer through seizures an having to fight for everything for this child to find an get a cure. Having to try medication after medication hoping for something to control the seizures. We were given this special child for a reason an that reason we may not know. But we do know we will do everything in our power to fight for our precious children with LGS an other Epilepsy syndromes. This special child will be our inspiration,  passion, strength an love of our life. Sure we may grumble, complain an have horrible days but we will always do what is best for this child because of that love we have for them.
We will continue to search, seek, look an hunt for a cure. We will raise awareness, educate an teach people about LGS an seizure disorders.
There will be tears, anger, exhaustion an not knowing if we can carry on another day but we will because we are parents looking for a cure for this precious child we love.