It has been a long time since my last post ! Things are always changing in our household it seems. Last month we found out we will be moving back to Alberta ! We made this choice because Quinn needs access to better health care since his condition is so unknown and Edmonton has more specialists then Saskatoon does. Also because I need my mommma... :)
So Kevin is already living in Alberta and working and I get to be a single mom til our acreage sells !! Then I move to Alberta with the kids, dogs and cats... oh and all our stuff.
Quinn meet with genetics specialist in Edmonton on Friday and they talked to us and said they feel Quinn doesn't have a treatable condition and they don't know what this is or why. They took a lot of blood for blood work and are going to take his DNA apart to see if they can find some missing links and etc. This process will take about a year to complete. Quinn started to feel sick with a fever on Thursday last week... yesterday he had an EEG appointment and meeting with the peds neuro Dr and they suggested we bring him down to Emerg since we were in the hospital anyways. After listening to Quinn and checking him out they decided to run some x rays and blood work ( the blood work was horrible because all this veins are blown out from last weeks blood work but after 10 mins of us pinning him down and him screaming they finally found a vein that would work). They decided he has pneumonia and also found a heart murmur ! Go figure eh....They first wanted to determine that the murmur wasn't being caused from the pneumonia and it wasn't thank goodness ! So they treated him for the pneumonia and we will deal with the heart murmur later. During our 6.5 hours in the hospital Brooke who was with us was amazing..... she rarely tested my nerves... she must have known mommy was stressed out !! Also I am sick too so that doesn't help my nerves.
So little things to be thankful for.... I am listing 10 but there is a lot more :)
1) I am thankful the heart murmur isn't as severe as they thought...
2) Popsicles from the ER nurses for Brooke and Quinn.... they were a lifesaver !!
3) The little treat bag that Dr Gamble gave to the kids from the Starlight Foundation !
4) For Christine ( Emma's bus driver) that took Emma home after school and watched her for him until 7pm when we were out of the hospital.
5)For Dr. Cattell's comment of OH I remember you ... you and your husband are such calm people and are just amazingly calm. ( from all the ER visits we have made with Quinn).
6) For the strength and courage to once again hold my little man down again as they try to find a vein to get blood from for blood work... holding your little one down never gets easier ( as you try to convince them you are doing this to help them).
7) For the nice Pharmacist at Walmart who said... you are still smiling through this all and I don't know why... my reply.... SMILE and smiling help everything when you don't know what else to do... SMILE lol... ;)
8) Quinn keeping his meds down after me having to put them in his mouth and hold his mouth closed... poor little guy is getting so strong and it hurts as a momma to have to pin your child down :(
9) Great report cards from the girlies from school !!
10) Quinn eating a slice of ham at supper tonight,.... first food in 5 days !!!!
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