Ups/downs and mooning

Life is back to normal ( for now) around here ! Except that Kevin is gone which isn't normal and really hard for me to adjust too.
Quinn is back to his crazy self... energy has returned with vengeance to make up for the few days he was out of commission ! This morning I walked into my living room to see him standing on the bench in my bay window with his undies pull down and butt cheeks to the window mooning the school bus picking up the girls.  BOYS.... seriously would a little girl think hmmm I am going to show the world my butt ?? Thankfully Quinn is 3.5 and it is still somewhat funny !
Quinn had a day free of seizures !!! This is only the second time this has happened since March when he first started having seizures.  This is so amazing but of course I'm still on edge waiting for one to happen because that is the way our lives have been since March. Praying for another seizure free day tomorrow ! Not sure if the change in his medications is helping the seizures or if it is something else.
This morning was a rough go for me ( could have been I was just so exhausted from Quinn being up at 430am in the mornings), when I don't get proper sleep ( enough) I start to worry and stress. Them two evils we taking me over this morning. I know I can't control anything with our home selling or people looking at it. I just really wish it would sell already or SOMEONE look at it ! We did have the one showing a couple weeks ago but nothing came of that. Being alone with the kids is extremely hard, emotionally and mentally. Because Quinn has so many needs he takes way more of my energy then I already have then I have the girls also. All hell broke loose this morning... since Quinn was up at 430am the girls got up at 5am.... then the fighting started and screaming. Brooke refusing to go to school, the girls mad at me because they don't like the lunch I'm packing for them. Quinn yelling and throwing his breakfast because as soon as I give him what he wants for breakfast he doesn't want it anymore or its yucky and he will throw it across the room if I don't get to his highchair quick enough. Oh and to boot my coffee pot is not working like it should and coffee isn't that easy to come by. ( Really hope Santa brings me a Keurig for Christmas). Then there is Emma screaming at me because her clothes don't fit OK and they are to tight ( when they aren't) ( yes I could be thankful she wants to wear loose fitting clothes and I am). All this before 7am..... and then all hell breaks loose again at 330pm :)
So I crave the day when I can shower alone... pee alone...do anything alone... but then the realty hits that we aren't a normal family... we have a special needs child who most likely will always need 24/7 care and can't be alone. He may not have had seizures today which is amazing but he still needs help with everything from walking to getting a drink ( his balance is always off so he falls really easy and spills everything), his needs his diapers changed several times throughout the day and I have to try and understand him when he talks to me ( because his speech is somewhat slurred and hard to understand due to the seizures and brain damage).
But back to ONE DAY AT A TIME... It is just a really hard to thing accept. Other moms are taking about working out, going for a run, going shopping, getting their hair done, going back to work and these aren't things I get to do anymore. Our lives revolve around Quinn and his needs. Our needs are last and rarely happen.
I have to always remember this saying I read several months ago.... What screws us up most in life is the picture in our head of how it is supposed to be !
Someday peace will come and until then I just need to get them big girl panties on ;)