The girls came home Wednesday evening! Was so happy to see them but soon remembered how much noise they make! Brooke and Quinn were right back into fighting mode within the hour of the girls getting home. Thankfully my mom is staying for a few days to help out since I have no clue how I would do it without help right now. Meal times right now are separate for the kids, Quinn goes outside with my mom while the girls eat to distract him. Quinn's meals are very set times 8am, 1130am, 430pm, and 730pm. He goes for a nap at about 12 or 1230. This will be challenging when I don't have help! I am getting some help from home care starting next week. A nurse will be coming out for a few hours on Thursday for Quinn.
I have started preparing Quinn's meals the day, but still takes me an hour and half every night to measure and prepare everything for the next day ! I'm hoping I can get faster at this soon... but measuring, weighing and labeling everything takes so much time.
The GOOD news is we have seen improvements with the seizures since he started the diet. The diet is so much work and really hard on Quinn but at least it is helping with the seizures.
The lovely people in this area where we live have organized a benefit for Quinn on July 14th. I am so amazed and thankful for all the support we get from everyone around here with everything that has gone on and is still happening !
No comments:
Post a Comment