Wednesday, April 25, 2012

Can't seem to catch a break

Poor Quinn !! This morning his rash is worse then ever and covering his whole body. We are thinking it is a allergic reaction to the clonazepam since this rash started on Friday and he started the new addition of this drug on Thurs. This drug has helped to control his tonic seizures in the morning so that is great but the side affects appear to be horrible balance and temper problems. Plus now this allergic reaction. He says it really hurts his rash, called the Dr's office and spoke to the nurse and we have to go back in at 1pm to see the Dr. so another trip to the hospital !~Just seems like that little guy can't catch a break ! Its one thing or another ! He also hit his head AGAIN this morning so he is *resting* now. It is so hard to get him to lay down, he just wants to run all the time.
The sedation for the MRI and spinal tap yesterday went well ! He did take a long time to wake up after the sedation.  He is supposed to lay flat to avoid headaches from the spinal tap because of the fluid loss, but he has other plans. When we got to the hospital I was allowed to go into the room with him to get him sedated so he wouldn't freak out because he was exhausted at this point and starving. It was tough holding my little guy while they had to pin him and hold the mask tight to his face to get him asleep. Then I left the room right away and went to sit in the hospital with Kevin til the Mri was done. I was so thankful a lady from church had brought us a meal that morning, because by the time we got home I was in no mood to make supper!
The girls have been fighting lots with Quinn and each other :( So it makes things really tough around here. It is so hard trying to balance everything !
I will update you all to what the Dr says about Quinn this afternoon !

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