Sunday, April 29, 2012

Routines are such a lovely thing

Quinn has gone over 30 hours with no tonic clonic seizures ! So that is good news, but he is now having around 20 ( that we notice could be more) absence seizures a day. These seizures last about 3-5 secs each and he doesn't fall which is good. He just makes a little funny noise and sometimes his foot twitches and he just stares and doesn't respond to anyone. I know for sure now that he has experienced all the following type of seizures over the last month. Tonic Clonic, Myo clonic, Absence seizures. We are starting to kind of get a routine going around here which is great because I am a routine person and feel just horrible without it ! So when Quinn has a seizure now I can get him into his position of being on his side, head tipped up and still manage to get the girls breakfast ready as they watch Quinn for me. I don't want to put to much responsibility on the girls but I also want them to know what to do and look for with Quinn. It does break my heart every time when the girls ask, When is Quinn going to get better or does he have to go to the hospital again. I got a special bag of $ store things together for the girls so when Quinn has his recovery time after the seizures and needs to sleep the girls get to pick one thing each from the goodie bag and then head downstairs so I can have quiet up here.
Quinn has been getting up so early these days. This morning was 3am... umm that is still night time in my books. But there isn't much I can do as he starts having his absence seizures as soon as he wakes up. Oh I miss the days of putting him in his bed room and closing the door !!! I miss having my bedroom to just Kevin and I. 
Giving Quinn his meds has become so hard. Whenever I do it he spits it out or throws up. So I need to have Kevin around to give the meds. Thankfully they need to be given 2 times a day not 3.
Soccer starts tomorrow night for the girls and then goes on Mon and Wed nights til Juneish. Quinn's soccer starts Thurs night ! His balance is way better now that he is off the clonazepam so hopefully he can play on Thursday because he has been looking forward to this so much !
I managed to get my floor washed last night !!!! It wasn't by choice though... Quinn decided to take his poopy diaper off and run through my kitchen.... ugh. Once the floor was washed and dry I couldn't believe how awesome it felt lol... Pretty sad when you are used to a gross floor ! But that is the joys of 3 kids under 7, 3 dogs and 2 kittens.
Ok on the topic of diapers and Quinn... since the seizures have started he is completely back into diapers and pull ups which isn't nice at all. He also now thinks its great fun to play with his poop. I'm blaming it on him hitting his head to many times...;)  Because that poor head of his is full of bruises and bumps !
So that is all the news from here ! Going to get on with my morning and continue the pots of coffee into my system :)


No comments:

Post a Comment