Monday, April 23, 2012

Pre MRI/Spinal tap day


Tomorrow is the big day... we have been waiting almost a month for this day and thankfully we didn't have to wait 5 more months ! I am nervous but calm at this moment... I find the less I think about it and try and live a *normal day* I don't worry and think the worst. Yesterday was a bad day because it was Sunday and we were home not doing much all day so your brain starts to think and think the worst. I find my emotions are one extreme to the next, I either think Quinn is dying and cant be saved or I think maybe nothing is wrong and its an easy tweaking of meds ( which working with getting meds to control his seizures has proven difficult). Another thing I am struggling with is people's looks and glares when we do go out with Quinn and he screams randomly or falls running all the time. I have a new respect for all hyper strung children because in Quinn's case the meds are making this worse and he isn't usually this crazy and people glare at you like you don't know how to handle your child. Quinn right now doesn't have a lot of control over his body or mind. Plus I think it would be very frustrating to be a 3 year old and not be able to do everything he did up until this happened.  Today we went into the city to get his blood work done and also the girls had dentist appointments.  Even a trip to the city is exhausting for Quinn and myself haha..
My girls came back on Saturday... we are settling back into a *normal* routine. I am stressed about when my sister leaves as to how I am going to manage the girls with Quinn and also getting food on the table. Being that Quinn needs to be watched 24/7 he needs to be by my side all the time which he isn't really fond of. He wants to do everything the girls are ! We had to buy baby gates, baby monitors an diapers again for Quinn since he started having all these problems. Just when I thought we were getting into the clear with our kids growing older and sleeping through the night this happens !! Yes I know things could be worse but sometimes I feel like some people just get the crappy end of the stick..( like me and us) (yes I am feeling sorry for myself ). Just seems like its always one thing or another around here and we can never just not have stress for a day or week. I would love a calm life on a beach with a good looking waiter and a nanny to help with the kids lol.. yes i will keep dreaming ! :)
Tomorrow we have to be at the hospital by noon. Quinn can't have anything to eat after midnight tonight and can't have anything to drink after 1030am tomorrow morning. THAT should be WONDERFUL... NOT.... its going to be a fight ! But this is what needs to be done. They are doing the MRI first at 130ish and then the spinal tap to follow. Once he starts to wake up I will be able to see him again, and then once he is  back to his *normal* we will be able to head home. Then the waiting game for results begins. They said if something bad comes back with will know later that day or Wed hopefully. SO hopefully we DON'T hear from them til next week :)

Posted some pictures of the kids from this afternoon playing in the mud/sand.....  :)


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