Seizures galore

On Tues we noticed Quinn had a rash that was getting worse and spreading over his body, by Wed it was horrible an he was covered. It was a hot, raised, red, bumpy rash. I called the Dr and we went into the hospital that afternoon ( since Quinn decided to get up at 3am that morning ). The Dr decided it was best to take him off the clonazepam because that was most likely causing the allergic reaction. We went 5 days seizure free and then BAM... they started at 5am this morning. Quinn is still on Valproic Acid which he has been on for almost 2.5 weeks. So apparently the clonazepam was helping control the seizures and go figure he has to be allergic to it :(. So very frustrating ! 
Seizures started at 5am this morning and continued til 9am. He had approx 16 seizures.. I lost count. We managed to get Emma on the bus for school before heading out the door back to the ER at the hospital. Then I had to cancel the allergist appointment which took 3 weeks to get into :( That appointment was this morning and we were stuck in the hospital... so now we need to wait til the 23rd of May to see the allergist.  Can't seem to catch a break it seems.... At the hospital the nurses tried and tried to get the IV in so if needed they could give him ativan if he started having more seizures. They finally after warming his foot for an hour were able to get the IV in his foot.. the poor guys veins are all blown, too tiny or not there :(. The Dr finally came to see us at noon and started Quinn on Keppra along with his valproic acid. This drug can take longer to get built up in the system so most likely it will be more and more seizures to deal with every morning for awhile.
My girls ( since they had been gone) witnessed the seizures today. I had them watch and explained that this isn't hurting Quinn but to make sure he is one his side so he doesn't choke. Poor Emma was the most concerned... she watched and just said when is he going to be better mom ?? I said, I hope soon ! Life is so hard right now. This morning Quinn had all his seizures from 5-9am, during this time I was trying to get Emma ready for school while making sure Quinn didn't try to stand up in between all his seizures. BUT I managed to get Emma out the door in time to make the bus ..but I was worried there for a minute !
I keep having to remember me...I keep forgetting to eat, drink... even go to the bathroom.... I go all day with forgetting these things because Quinn takes so much time and effort that I forget ! Wishing I was losing tons of weight but nope :) I'm gaining...
Today was tough... I wanted to give up so many times.... call it quits... run away... but that wouldn't solve anything. I want to hit my head on the wall I am so frustrated.... Its been 5 weeks of this on Saturday... feels like forever. We haven't had much good news or hope with anything so far except finding out he doesn't have a brain tumor. It is so hard to just keep watching you little guy suffer over and over... pinning him on the hospital and he yells and cries as they try for mins to get the IV in him. Holding him down as they sedate him to sleep for the MRI and he fights it... having him look in my eyes as he is full of suffering and me pinning him down... Someday I may crack...hopefully not soon! Just trying to hold onto that life will get easier and this is out of my control.