Wowzers are my feelings/emotions/thoughts out of wack ! I have reached the point of not knowing what to say or do anymore. After 6 weeks of living in hell and hoping it would get better since that is what EVERYONE tells me ( which is a load of crap please don't sugar coat things for me), things aren't getting better at all. We are exactly in the same place as we were 6 weeks ago. He isn't any better and maybe even worse. I met with the neuro Dr yesterday.. He now knows not to sugar coat anything with me because I hate bullshit just tell me as it is ya know.. So Dr Huntsman and Lowery both are coming to the conclusion that this most likely is a Idiopathic form of Lennox–Gastaut syndrome. They are concluding to this because of his last EEG an also because of him not responding at all to any medications. Plus his seizures are appearing to get worse.. They have decided a plan for him which is, starting Friday this week once he is on an higher dose of meds they are giving him 2 weeks to improve. If he doesn't improve Quinn will be admitted to the hospital for up to a week an they will start the Ketogenic Diet. He needs to be in the hospital for this because they have to monitor him on this diet.. Google all this stuff if you want more info since I don't have the energy to to explain it to you all. Then if the diet fails we will have to go to steroids. So this means ( I don't think increasing the Keppra is going to help since it hasn't helped yet) I will be missing my brothers wedding in Alberta.Also my hubby is gone for work that week. I am going to end this post at that since I don't have ANYTHING nice to say... Maybe I will post tonight if my mood gets better !
Also poor Quinn got another dent in his head this morning from falling into a wooden chair during a drop seizure. JOYS ! not...
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