Friday, May 11, 2012

Into week 7

I can't believe we are in May and half way through May ! I keep thinking its April and half the time I don't know the day or month. 7 weeks ago tomorrow our lives changed and little did we know we would still be dealing an trying to cope with this all. People who have healthy children are so blessed.... they really don't know how lucky they are. I am still struggling with why Quinn and why me... since I am the main caretaker of Quinn. I really just wish I could *accept* this all and move forward and get on with our lives, but we keep hitting road blocks and bumps that make me wonder why again. Also never did I think I would be publicly blogging my thoughts and feelings to you all !! I was looking at my blog stats the other day and I can't believe the countries that have viewed my page. Malaysia, Germany, Russia, UK, USA and Canada.... That is a lot of people and places to think of me as a crazy lady ! haha... In case you haven't noticed already I never re read what I type before I post the blog. Mostly its because I'm lazy so if things don't make sense sometimes that is why :) BUT I always do run the spell check because that is only one click ;)
I have been getting my list together of things that need to be done or changed before Quinn comes home from the hospital after he starts the Ketogenic diet.   This list includes.... Locks for all cupboards, fridges and freezers, making a special log book for once he starts the diet ( I already have a book but its hand written by me and I hate messy books, I want everything nice and neat in a binder ! ), buying his scale he needs for his food weights, getting ketone strips to test his urine at home and making a monthly or weekly schedule for the girls and Quinn. OH and I also need to pack the girls for going away for 2 weeksish again. ( yes I know weeksish isn't a word ;) )  , I also have to get the disability paper work filed and sent away.
Today I had a feeling of almost normal haha... the kids and I went into the city to drop some library books off and get Quinn's ice cream cake which I will post a picture of. It was a beautiful day out so in the city I was able to have the windows down an music cranked and rock the mini van out with the kids. YES I felt normal for that time period haha... It was great to be rockin out with the kids for a few mins even though i did keep having to look in the rear view mirror to make sure Quinn wasn't seizing.  I feel young again and like I have no worries when I can do that... even though I am driving a mini van with 3 kids and I'm not actually that old haha....  Life was soooo simple when I was 16 ( even though I thought it was sooooo hard haha), so little memories like today are great. THEN reality sinks in when Brooke starts pinching Quinn and kicking him and Quinn starts screaming at Brooke an then Emma starts yelling and crying because Brooke is being too loud for her ears and it hurts her ears. So I tell Emma plug your ears then but she just continues to yell and scream and Brooke keeps pinching Quinn and screaming. Quinn is still yelling at Brooke and I'm yelling at Brooke, Emma and Quinn.  Oh the joys of motherhood haha....

Here is the picture of Quinn and his cake :) Love that boys eyes and smiles !


No comments:

Post a Comment